Do you think you know a patient with NEDAMSS or IRF2BPL related disorder?

Do you know a patient with similar symptoms or condition?
Are you a researcher studying the IRF2BPL gene and how it contributes to this disease?

To contact us, email alexsodysseyirf2bpl@gmail.com

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“Alone, we can do so little; together, we can do so much.”

– Helen Keller