Rare Mamas Rising is a podcast created by Nikki McIntosh, a rare mom that inspires and encourages other mothers of children with rare disorders through her podcast. In episode 14, Nikki talks to Alex's mom, Caroline about his journey to diagnosis and what resources are available for parents still seeking diagnosis for their child.
https://raremamas.com/episodes/ep14-rare-mamas-rising-a-north-star-in-a-rare-universe-with-cure-founder-rare-mom-caroline-cheung-yiu/
https://raremamas.com/episodes/ep14-rare-mamas-rising-a-north-star-in-a-rare-universe-with-cure-founder-rare-mom-caroline-cheung-yiu/
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